autistic women

Autism and the body-mind disconnect

This is something that’s been on my mind for a while, and I’ve really wanted to sit down and get my thoughts together on it. When I first heard about the body-mind disconnect that is experienced by some autistic people, it all sounded a bit strange – but gradually I started to realise that it explained a lot of things that I’d been unable to fully articulate about my relationship with my body.  Ever since I was a child I’ve struggled to get my body to do what I want it to do, to feel how I think it should feel, and to look how society deems an attractive body should look like. I’ve always blamed it on being overweight, and that definitely contributes to many of my issues, but it doesn’t quite tell the whole story.

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Taking the mask off

My autism diagnosis is still a really new thing for me, but I’ve been feeling more and more over the last couple of weeks that I wanted to tell people about it. One reason is because there are quite probably tens of thousands of people like me, who have no clue that they’re autistic, and the only way that is going to change is by amplifying autistic voices and providing an alternative to the ‘awkward geeky guy’ stereotype that most people associate with the word ‘autism’. The other reason though, I think, is because I feel this real need to live my new life as authentically as possible. My life since diagnosis has been a series of lightbulb moment – sudden realisations that explain so many different aspects of my past. I do feel like a different person. I feel calmer, lighter, more aware of myself. I’m enjoying getting to know the person under the many layers of masking that have built up over the last 38 years.

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Diagnosis

I am taking part in the Instagram Chronic Illness January Photo Challenge, and I thought I’d try and write a few blog posts to go along with the pictures I’m posting. Today’s theme is ‘Diagnosis’. One of my main motivations for writing about my experience with autism – aside from using the process of writing to help me work through my thought process – is to provide another voice for women who have lived a significant portion of their lives without knowing that they’re autistic. I’m certain I will know other people who are on the spectrum, but haven’t realised it, and if writing honestly about my experiences can help someone else make a connection with their own life then I feel I ought to do it.

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Christmas

This year was my 39th Christmas as an autistic person, but the first Christmas that I have known I’m autistic. It’s been interesting. One of the things I have found a little weird about exploring my autistic brain is that I keep getting these little moments of “Oh, that’s why I’ve always done this…”, and this Christmas has been no different. I had a big one today. I’ve been reading lost of posts from other autistics on Twitter talking about coping with Christmas – the sensory overload, having to be social, and how they survive it all – all the while thinking that I’ve never really had issues with Christmas. I did have a little weep yesterday (Christmas Day itself), but that was because I had a stinking cold and didn’t get enough sleep… wasn’t it??

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Me and my autism

I have been thinking a lot lately about identifying as autistic, and why – especially as a person who thought I knew quite a bit about autism – it took me so long to realise that I have it myself. There are still a lot of misconceptions about what autism is and how it displays, particularly in females. When I was learning about autism in the late 90s, the lack of theory of mind was an essential part of diagnosis, and we were taught that autism is much less common in women, but much more severe. As I’ve been doing more recent research, I’ve found I don’t really identify with a lot of the prominent autistic female narratives that I’ve found in books or blogs. For this reason I’ve decided to explore this in a series of short blogs as I get a chance to put my thoughts down, partly as a way of making sense of it myself, and partly for any other women who feel different but don’t quite know why.

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