autism in adults

Finding our feet

We’re getting there. By my reckoning we’re approaching the end of week 4, and we’re starting to find things that seem to work. I’m being deliberately vague, as there’s still a voice in the back of my head that says it’s not ‘working’ yet because we’re not doing regular hours on regular days, but I’m doing my best to ignore it. Yesterday for example, we read four chapters from two different fiction books, studied the famous ‘elephants on acid’ research and talked about ethics of using animals for science experiments, and discussed LGBT+ history and in particular how terminology has changed over time (including what has needed to happen in order for those changes to occur, and how they have impacted Alex’s generation) as well as quite a lot about binaries, categorising things, and whether you can represent the human experience using the numbers 1-7. We had a mini session on languages and tried our hands at Welsh, Swedish, German, and Spanish, and designed some cover art for the podcast we’re planning to start to document our Home Ed journey. Today, by comparison, it’s nearly twenty past four and we’ve managed a grand total of one short walk.

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Autism diagnosis – one year on

I set out writing this post with the intention to reflect on the last 14 months or so since my autism diagnosis; however I’ve found a lot more to reflect about than I had expected(!) so this is going to end up as a series of posts, each with a particular theme. (Or more likely, it will be one post and then get forgotten.) This particular post is about how my diagnosis has helped me to manage the social interactions in my life, and reframe some of the negative beliefs I held about myself as a person. Since being diagnosed with autism just over a year ago, I’ve been fairly open about it, both in my online life and my ‘real’ one. I feel the need to talk about it in a way that I never have with sexuality, mental health, or other aspects of my personality. Autism has become part of my identity.  

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Autism and the body-mind disconnect

This is something that’s been on my mind for a while, and I’ve really wanted to sit down and get my thoughts together on it. When I first heard about the body-mind disconnect that is experienced by some autistic people, it all sounded a bit strange – but gradually I started to realise that it explained a lot of things that I’d been unable to fully articulate about my relationship with my body.  Ever since I was a child I’ve struggled to get my body to do what I want it to do, to feel how I think it should feel, and to look how society deems an attractive body should look like. I’ve always blamed it on being overweight, and that definitely contributes to many of my issues, but it doesn’t quite tell the whole story.

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Taking the mask off

My autism diagnosis is still a really new thing for me, but I’ve been feeling more and more over the last couple of weeks that I wanted to tell people about it. One reason is because there are quite probably tens of thousands of people like me, who have no clue that they’re autistic, and the only way that is going to change is by amplifying autistic voices and providing an alternative to the ‘awkward geeky guy’ stereotype that most people associate with the word ‘autism’. The other reason though, I think, is because I feel this real need to live my new life as authentically as possible. My life since diagnosis has been a series of lightbulb moment – sudden realisations that explain so many different aspects of my past. I do feel like a different person. I feel calmer, lighter, more aware of myself. I’m enjoying getting to know the person under the many layers of masking that have built up over the last 38 years.

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Navigating the world of work

I have had a very mixed experience with the world of employment. I often feel like I haven’t really achieved the things I’m capable of, haven’t got where I want to be in my career. Where I’m capable of. I don’t quite mean that I haven’t reached the pinnacle of my career yet, I mean that I, as I am today, right now, ought to be doing better than I am. I’m pretty sure this is not a uniquely autistic thing, but there are a few things I need to unpack about why I’ve struggled in work, so that I can move on and do better. I also really want to do this in a balanced way, so I can work out what I do well, as well as what I struggle with.

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Diagnosis

I am taking part in the Instagram Chronic Illness January Photo Challenge, and I thought I’d try and write a few blog posts to go along with the pictures I’m posting. Today’s theme is ‘Diagnosis’. One of my main motivations for writing about my experience with autism – aside from using the process of writing to help me work through my thought process – is to provide another voice for women who have lived a significant portion of their lives without knowing that they’re autistic. I’m certain I will know other people who are on the spectrum, but haven’t realised it, and if writing honestly about my experiences can help someone else make a connection with their own life then I feel I ought to do it.

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Christmas

This year was my 39th Christmas as an autistic person, but the first Christmas that I have known I’m autistic. It’s been interesting. One of the things I have found a little weird about exploring my autistic brain is that I keep getting these little moments of “Oh, that’s why I’ve always done this…”, and this Christmas has been no different. I had a big one today. I’ve been reading lost of posts from other autistics on Twitter talking about coping with Christmas – the sensory overload, having to be social, and how they survive it all – all the while thinking that I’ve never really had issues with Christmas. I did have a little weep yesterday (Christmas Day itself), but that was because I had a stinking cold and didn’t get enough sleep… wasn’t it??

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Stimming for mental health

Yesterday was tricky. I was doing a new thing that I’d never done before, and which necessitated me being around lots of noisy children for a prolonged period of time. (Tap dancing in a showcase, if you’re interested.) When we got home, I told my husband that he was not allowed to talk to me until I came out from under my duvet. Up until now, my duvet has been pretty much my only coping strategy, and as life is going through a difficult phase I feel like I’m using it all the time. Often I get home from work and go straight to bed. I’ve been eating meals in bed. I’ve been working in bed. It’s good, because it does help me feel better, but it’s quite limiting, and it’s affecting my relationships with my family, particularly my children.

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Stimming

So here goes, the start of a self-exploration of what autism means to me. In this first blog I’m going to talk about stimming. The term ‘stimming’ refers to self-stimulating behaviours that are often used by people with autism or other developmental disorders. The most common one you’re likely to think of is flapping your hands – my son does this a lot when he’s excited! Some people rock, some people jiggle, hum, bang their head, make noises; there’s really no end to the variety of stims possible.

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Me and my autism

I have been thinking a lot lately about identifying as autistic, and why – especially as a person who thought I knew quite a bit about autism – it took me so long to realise that I have it myself. There are still a lot of misconceptions about what autism is and how it displays, particularly in females. When I was learning about autism in the late 90s, the lack of theory of mind was an essential part of diagnosis, and we were taught that autism is much less common in women, but much more severe. As I’ve been doing more recent research, I’ve found I don’t really identify with a lot of the prominent autistic female narratives that I’ve found in books or blogs. For this reason I’ve decided to explore this in a series of short blogs as I get a chance to put my thoughts down, partly as a way of making sense of it myself, and partly for any other women who feel different but don’t quite know why.

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